TUMUT Fire and Rescue firefighters are taking the fight against motor neurone disease to the highest level.
“On Saturday, October 14, a team of firefighters from Tumut 467 will be climbing the iconic Sydney Tower Eye along with 597 of other firefighters from around New South Wales, Australia and the world,” a brigade spokesman said.
“We endeavor to get to the top as quickly as possible in full structural fire fighting personal protective gear including breathing apparatus to raise money and awareness for Motor Neurone Disease (MND).”
Teams of firefighters will race to climb all 1504 stairs (98 floors) of the Sydney Tower Eye, each carrying an additional 20kg of gear. It will be a gruelling challenge, however, it is nothing in comparison to the challenge patients with MND face every day.
“We have organised fundraising that locals will see around town between now and October. We are currently organising a raffle with prizes donated by local businesses. I would like take this time to thank the business that have already put their hands up to help out. In the coming weeks people will start to see us around town selling tickets and doing meet and greets. Make sure you come and say hello and enter for a chance to win some great prizes and support a great cause.”
Motor neurone disease, is also called ALS, or Lou Geofhrigs Disease.
“It doesn’t matter what you call it you don’t want it,” the brigade spokesman said.
“Normal healthy fit people exactly like you get MND. It strikes indiscriminately, at anytime with no proven explanation.”
MND is a progressive, terminal neurological disease. It affects the nerve cells (neurones) controlling the muscles that enable us to move, speak, breathe and swallow, causing them to degenerate and die. A person’s senses and intellect are not affected.
Every dollar raised will directly support vital MND research at the Macquarie University MND Research Centre.
For any members of the public who wish to donate straight to the team, the link is as follows: https://firiesclimb.gofundraise.com.au/page/Tumut467